The kids are now nearly 11 years old. Only 1 more month. In March we plan to visit Olga and Vasyl in Huntsville, AL for a weekend. We are all looking very forward to it. We have skyped with them a couple of times and that was a lot of fun.
Last night, Simon went to bed at 8:30 which is his normal time. At 2:42am I woke to noise in his room. I find out he's been awake since 1:33am and he was playing on my Kindle. That is a big no-no. And he knew better. After checking my emails this morning, I find that he had ordered a very inappropriate video and a game from Amazon. So that didn't make me happy at all. He is wired. Not the least bit sleepy and up jumping around.
We have been adjusting his meds (Respirdal) because of him being diagnosed with Central Sleep Apnea in December. He had a sleep study done and it was positive for this type of sleep apnea. After reading about it, I became very concerned. As well did the doctor (Dr. Amin in Cinci). He wants to start the non-invasive testing first to see what we may be able to find out. He had an EKG which has to be re-done. Apparently the leads were backwards and the test was non-conclusive. So Dr. Batsel-Thomas ordered another one for April 3 when we see Dr. Amin again. The other thing is to start decreasing his Respirdal to see if that changes anything. So we are in the middle of decreasing it now.
Feb 28, 2012 with behavior therapist that is coming to our home.
Feb 29, 2012
In Feb 2011 we applied for the "Michelle P Waiver" through KY. Lots of paperwork, but was hoping it would be worth it in the end. During the early summer we started to get denial letters. After appealing it multiple times we were given a hearing in which we had to get an attorney to help us. So $1000 later we are at a hearing. Before the hearing even began, the state side said they didn't understand why we were all hear. I told them about the denial letters we were getting. Then he said "you were approved in Feb 2011. The letters are for a specific service. And all you need is to have the nurse do the evaluation and get it approved" I couldn't believe what I was hearing. Finally in December we were given a KY medical card for the kids as a secondary insurance.